But unlike the cancer patient, our bodies do not show the wear and tear this disease has put it through. Unlike the cancer patient, we have to fight and advocate for treatment for ourselves, by ourselves. Unlike the cancer patient, we often lack the compassion and understanding of others. But what hurts us the most is the stigma; that it's just all in our heads. A person who looks normal and healthy on the outside couldn't possibly be telling the truth about being in pain all day and every day. Would you tell someone who's diabetic that drinking more water would cure him? Would you treat someone with COPD as a drug seeker everytime she needed a nebulizer treatment to help her breathe?
These are the things we face on a daily basis - scrutiny, judgement, discontent and evel malcontent. All because we don't look sick. Educate yourself. Don't EVER assume that your wife, husband, brother, sister, son, daughter, coworker, classmate, friend, or cousin is lying about having Migraine disease. No one in their right mind would ever opt to live a life of pain. Ignorance inflicts severe emotional pain, making the physical pain a lot harder to cope with. If the shoe was on the other foot...Well, you wouldn't want to ever wear or see those shoes again.
CHRONIC MIGRAINE AWARENESS NEWS!!!
AWARENESS IS SPREADING!!!
On June 29th, our first Chronic Migraine Awareness Day, Advanced Migraine launched a new website www.ChronicMigraineHelp.com, Facebook page, Twitter for the migraineurs to find support and share information. I, Cat Charrett-Dykes, will be a featured writer on the Advanced Migraine's Chronic Migraine Blog. I will be sharing my story and telling the world what it is like to be subjected to this life. Together Advanced Migraine and CMA hope to change lives one person at a time.
TAKE ACTION NOW!
The Alliance for Headache Disorders Advocacy has created a petition urging Congressional hearings on the impact of headache and migraine disorders. The whole point of this particular petition is to make aware all of the facts about headache and migraine disorders and to bring it all out into the open. Facts like the very disabling effects of headaches and migraines, the stigma of headaches and migraines, inadequate treatment and how many or undertreated, and the extreme underfunding of research.
Please sign the petition, and when you do, read the comments left by people who have or are affected by headache and migraine disorders. They really do create a snapshot of how life is like for people to have to live with such debilitating chronic pain and how it feels to know that no matter how hard you try and advocate for yourself, you still may not be able to get the medical treatment deserving of your condition. I know that I have to fight for my care more times than not and that is very hard to do when you are in pain more days out of the month than you are not.